# The Caregiver's Journey

> Practical Tips and Candid Conversations for Alzheimer's and other types of dementias family caregivers


## Posts

- [18. When Your Loved One with Dementia is Missing: Essential Search and Rescue Guidelines](https://thecaregiversjourney.org/when-your-loved-one-with-dementia-is-missing-essential-search-and-rescue-guidelines/): The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we’ve compiled three valuable tips for these frightening situations. Understanding the Unique Challenges Searching for someone with dementia presents distinct challenges that differ from typical missing person cases. Your loved one may be experiencing time differently, perhaps mentally living in the past, and might be attracted to specific […]
- [18. Search and Rescue: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/search-and-rescue-three-essential-tips-alzheimers-and-other-dementias/): The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we've compiled three essential tips for these frightening situations.
- [17. Holiday Harmony: Balancing Traditions with Dementia Care](https://thecaregiversjourney.org/holiday-harmony-balancing-traditions-with-dementia-care/): The secret to successful holiday celebrations with our dementia care receivers isn’t perfect decorations or parties — it’s having a peaceful retreat space ready for them when needed. As caregivers navigating the holiday season with loved ones who have Alzheimer’s and other types of dementia, we’ve learned intentional planning makes all the difference. The holiday season brings additional activities, decorations, and visitors that can disrupt the routines so vital to our care receivers’ well-being. Success requires careful observation, thoughtful preparation, and gradual adaptation of celebrations. Through our experiences, what we’ve learned from support groups, and from others on their journeys, we’ve developed five essential tips to help create positive holiday experiences while maintaining the calm and familiar environment your care receiver needs.
- [17. Preparing for Holidays: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/17-preparing-for-holidays-five-essential-tips-alzheimers-and-other-dementias/): The secret to successful holiday celebrations with our dementia care receivers isn't perfect decorations or parties—it's having a peaceful retreat space ready for them when needed. As caregivers navigating the holiday season with loved ones who have Alzheimer's and other types of dementia, we've learned that intentional planning makes all the difference. The holiday season brings additional activities, decorations, and visitors that can disrupt the routines so vital to our care receivers' well-being. Success requires careful observation, thoughtful preparation, and gradual adaptation of celebrations. Through our experiences, what we've learned from support groups, and from others on their journeys, we've developed five essential tips to help create positive holiday experiences while maintaining the calm and familiar environment your care receiver needs. 
- [16. Savoring Independence: Mastering Mealtime in Dementia Care](https://thecaregiversjourney.org/savoring-independence-mastering-mealtime-in-dementia-care/): We wish we’d known about sporks and low bowls much earlier with our care receivers dining! As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned eating and drinking become significant challenges. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed seven important tips to help you and your care receiver navigate dining. 
- [16. Eating and Drinking: Seven Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/eating-and-drinking-seven-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned eating and drinking become significant challenges. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed seven important tips to help you and your care receiver navigate dining.
- [15. Personal Care: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/personal-care-four-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided!     Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care.
- [15. Personal Care Essentials: Shaving, Nails, Dental and Hair for Dementia Care](https://thecaregiversjourney.org/personal-care-essentials-shaving-nails-dental-and-hair-for-dementia-care/): I wish I’d realized I didn’t have to complete grooming tasks at one time! As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided! Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care.
- [14. Bathing and Dressing: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/bathing-and-dressing-four-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned bathing and dressing can become significant challenges. These activities are often early signs of transitioning from the initial phase of the caregiving journey where we’re simply prompting and helping them, to what we call the "messy middle”, when we begin asserting more control. We are Nancy Treaster and Sue Ryan. Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four important tips to help you navigate bathing and dressing for your care receiver.
- [13. Incontinence Overnight: Four Essential Topics / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/incontinence-overnight-four-essential-topics-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned overnight incontinence is one of the most challenging aspects of the journey. It's not a topic often discussed, yet it's a reality for us to face with compassion, dignity, and preparation. We are Nancy Treaster and Sue Ryan. Through our experiences, we've developed four important tips to help you navigate overnight incontinence in your caregiving journey.
- [14. Threads of Care, Washing Away Worries: Four Tips for Dressing and Bathing in Dementia Caregiving](https://thecaregiversjourney.org/threads-of-care-washing-away-worries-four-tips-for-dressing-and-bathing-in-dementia-caregiving/): We wish we’d known we could let the shower go away much earlier in our caregiving journeys. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned bathing and dressing can become significant challenges. These activities are often early signs of transitioning from the initial phase of the caregiving journey where we’re simply prompting and helping them, to what we call the "messy middle”, when we begin asserting more control. We are Nancy Treaster and Sue Ryan. Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four important tips to help you navigate bathing and dressing for your care receiver.
- [13. Through the Night: Your Compassionate Guide to Overnight Incontinence in Alzheimer's and Dementia Care Receivers](https://thecaregiversjourney.org/through-the-night-your-compassionate-guide-to-overnight-incontinence-in-alzheimers-and-dementia-care-receivers/): Wisdom we wish we had about all phases of incontinence before it began. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned overnight incontinence is one of the most challenging aspects of the journey. It's not a topic often discussed, yet it's a reality for us to face with compassion, dignity, and preparation. We are Nancy Treaster and Sue Ryan. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed four important tips to help you navigate overnight incontinence on your caregiving journey.
- [12. When Dignity Meets Dependence: Mastering Bowel Incontinence and Bedbound Incontinence Care for Your Loved One with Alzheimer's or other Dementias](https://thecaregiversjourney.org/when-dignity-meets-dependence-mastering-bowel-incontinence-and-bedbound-incontinence-care-for-your-loved-one-with-alzheimers-or-other-dementias/): Wisdom We Wish We Had About Incontinence Once It Began. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that full incontinence is an inevitable part of our journey. It’s a topic not often discussed, yet it’s a reality for us to navigate with compassion, dignity, and preparation — for both us and our care receiver. We are Nancy Treaster and Sue Ryan.
- [12. Bowel and Bedbound Incontinence: Two Essential Topics / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/bowel-and-bedbound-incontinence-two-essential-topics-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that full incontinence is an inevitable part of our journey. It’s a topic not often discussed, yet it’s a reality for us to navigate with compassion, dignity, and preparation — for both us and our care receiver. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed 2 valuable tips to help you navigate bowel and bedbound incontinence in your caregiving journey.
- [11. Incontinence - Cleaning Your Care Receiver: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/incontinence-cleaning-your-care-receiver-four-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned managing incontinence is one of the most challenging aspects of our journey. It’s a topic where having detailed information is vital to our adjusting to this part of our journey mentally, physically, and emotionally. We are Nancy Treaster and Sue Ryan. Through our experiences, and insights we’ve learned from others in support groups, we’ve developed three indispensable tips to help you navigate the important component of incontinence care with your care receiver — cleaning them.
- [11. Gentle Hands, Clean Start: Mastering Cleaning Your Care Receiver](https://thecaregiversjourney.org/gentle-hands-clean-start-mastering-cleaning-your-care-receiver/): Three Indispensable Tips for Easier Incontinence Care. We both wish we knew how to navigate all aspects of incontinence in our care receiver before it began. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned managing incontinence is one of the most challenging aspects of our journey. It's a topic where having detailed information is vital to our adjusting to this part of our journey mentally, physically, and emotionally. We are Nancy Treaster and Sue Ryan. Through our experiences, and insights we’ve learned from others in support groups, we've developed three indispensable tips to help you navigate the important component of incontinence care with your care receiver - cleaning them.
- [10. Caregiving’s Hidden Challenges: Embracing Incontinence in Dementia Care with Compassion, Grace and Dignity](https://thecaregiversjourney.org/caregivings-hidden-challenges-embracing-incontinence-in-dementia-care-with-compassion-grace-and-dignity/): Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable — and can be — a challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, grace, and dignity for our care receivers — and for us!
- [10. Incontinence Begins: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/incontinence-begins-four-essential-tips-alzheimers-and-other-dementias/): Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable - and can be - a  challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, dignity, and grace for our care receivers and for us. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed four tips to help you navigate the pre-incontinence and early incontinence phases on your caregiving journey.
- [9. Incontinence: The Unspoken Challenge in Caregiving](https://thecaregiversjourney.org/incontinence-the-unspoken-challenge-in-caregiving/): Incontinence can be one of the most difficult areas of our caregiving journeys. It’s personal. It’s awkward. It’s rarely something discussed — by anyone — making it potentially uncomfortable to talk about. It’s also one of the most important areas to navigate with compassion and dignity — for us and for our care receiver.
- [8. Preparing Young Adults for a Family Member’s Dementia Journey](https://thecaregiversjourney.org/preparing-young-adults-for-a-family-members-dementia-journey/): When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. During Merritt’s 20’s, his father, age 60, was diagnosed with Frontotemporal dementia. His grandfather, age 85, was diagnosed with Alzheimer’s disease.
- [9. Preparing for Incontinence: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/preparing-for-incontinence-four-essential-tips-alzheimers-and-other-dementias/): Who knew being prepared could make such a difference in managing incontinence? Incontinence can be one of the most difficult areas of our caregiving journeys. It’s personal. It’s awkward. It’s rarely something discussed — by anyone — making it potentially uncomfortable to talk about. It’s also one of the most important areas to navigate with compassion and dignity — for us and for our care receiver. Early preparation is essential. This is your moment of truth as a caregiver. Ask yourself: Can I handle this physically? Mentally? Emotionally? And if so, how? The good news is, you’ve got time to think it through, talk with others, and make smart decisions. Use this runway wisely — your future self will thank you. We are Nancy Treaster and Sue Ryan — we’ve faced incontinence care head-on. Trust us, it’s better to think about this now or you’ll wish you had. There’s a lot going on with incontinence! In this episode, we’re sharing four game-changing tips to help you be prepared.
- [8. Preparing Young Adults for a Family Member's Dementia: Four Essential Tips](https://thecaregiversjourney.org/preparing-young-adults-for-a-family-members-dementia-four-essential-tips/): When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. When Merritt was in his early twenties, his dad, who was 60 at the time, was diagnosed with Frontotemporal dementia. A few short years later, his grandfather, at the age of 85, was diagnosed with Alzheimer’s disease. Merritt’s experiences led us to create this episode to help other young adults. He has distilled his thoughts on how to be better prepared into four essential tips for young adults facing a family member’s dementia diagnosis.
- [7. Home Safety: Three Essential Tips / Alzheimer's and Other Dementias](https://thecaregiversjourney.org/home-safety-three-essential-tips-alzheimers-and-other-dementias/): We are Nancy Treaster and Sue Ryan. Through our experiences as caregivers for our family members and loved ones with Alzheimer’s and other types of dementia, we’ve learned ensuring home safety is both vitally important and ever-changing. In this post, we’re sharing three main tips for managing safety — both inside and outside the home. These help you keep your loved one safe while giving you peace of mind.
- [7. Home Safety Tips for Caregivers of Loved Ones with Dementia](https://thecaregiversjourney.org/home-safety-tips-for-caregivers-of-loved-ones-with-dementia/): You’re going to wish you’d known about padding hard corners earlier in your caregiving journey! We are Nancy Treaster and Sue Ryan. Through our experiences as caregivers for our family members and loved ones with Alzheimer’s and other types of dementia, we’ve learned ensuring home safety is both vitally important and ever-changing. In this post, we’re sharing three main tips for managing safety — both inside and outside the home. These help you keep your loved one safe while giving you peace of mind.
- [6. Leaving Your Care Receiver Alone: Six Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/leaving-your-care-receiver-alone-six-essential-tips-alzheimers-and-other-dementias/): You're going to wish you knew about the fifth tip for managing your loved one's independence much earlier! As caregivers for family with Alzheimer’s and other dementias, we've learned that leaving them at home alone can be a challenging and anxiety-inducing experience. In this post, we'll share strategies for maintaining their independence while ensuring their safety. We are Sue Ryan and Nancy Treaster, and through our experiences,  we've developed six tips to help you navigate this temporary phase of your caregiving journey.
- [6. Leaving Your Loved One at Home Alone: Six Essential Tips](https://thecaregiversjourney.org/leaving-your-loved-one-at-home-alone-six-essential-tips/): You're going to wish you knew about the fifth tip for managing your loved one's independence much earlier! We are Sue Ryan and Nancy Treaster. As caregivers for our family members with Alzheimer’s and other types of dementia, we've learned leaving them at home alone can be a challenging and anxiety-inducing experience, whether they are living with us or living on their own. In this post, we're sharing six tips we've developed to help you navigate this phase of your caregiving journey, helping your care receiver maintain their independence while ensuring their safety.
- [5. Removing Driving Privileges: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/removing-driving-privileges-four-essential-tips-alzheimers-and-other-dementias/): If you can successfully leverage tip one in this episode you will have an easy path to taking away the car keys. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both learned that taking away the car keys can be a sensitive and important issue to address. In the beginning stages of dementia, our primary goal is to balance safety with our care receivers' desire for independence. We are Sue Ryan and Nancy Treaster, and through our experiences, we're offering four key tips.
- [4. Wandering: Ten Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/wandering-ten-essential-tips-alzheimers-and-other-dementias/): I wish I had known about this child proofing tip before I spent so much money on locksmiths. In this episode we talk about wandering. As caregivers for family with Alzheimer’s and other dementias, we've learned that wandering is a complex and often frightening behavior that requires careful management. Wandering can occur both inside and outside the home, during day or night, and each scenario presents unique challenges. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four tips to address wandering while maintaining our loved ones' dignity as well as ensuring their safety.
- [3. Communication – in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations](https://thecaregiversjourney.org/communication-in-the-beginning-four-essential-tips-alzheimers-and-other-dementias-practical-tips-and-candid-conversations/): You are going to wish you knew about the third tip in this episode much earlier! As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that communication is a constantly evolving process. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible. We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed four tips to help you communicate. 
- [2. Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/memory-loss-four-essential-tips-alzheimers-and-other-dementias/): Does it feel like a punch in the gut every time you realize something new your loved one has forgotten?  As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that memory loss in the early stages is a challenging journey. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible while providing support behind the scenes. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four main tips that we'd like to share with you.
- [1. Meet Our Podcast Team – Why a Podcast for Dementias Family Caregivers](https://thecaregiversjourney.org/meet-our-podcast-team-why-a-podcast-for-dementias-family-caregivers/): We are Sue Ryan, Nancy Treaster, and Merritt Treaster. In this episode we're introducing ourselves to you and sharing why we are so passionate about bringing you practical tips and candid conversations for Alzheimer’s and other dementia family caregivers. Watch Meet Our Podcast Team – Why a Podcast for Dementias Family Caregivers.
- [5. Sometimes It’s Easy — Sometimes It’s Hard! Practical Tips for Removing Driving Privileges From Our Loved ones With Alzheimer’s or Other Dementias](https://thecaregiversjourney.org/sometimes-its-easy-sometimes-its-hard-practical-tips-for-removing-driving-privileges-from-our-loved-ones-with-alzheimers-or-other-dementias/): If you can successfully leverage tip one in this episode you will have an easier path to taking away the car keys! As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we both learned this is a sensitive and important issue to address. In the beginning of their diagnosis, one of our primary goals is to balance safety with our care receivers’ desire for independence. We are Sue Ryan and Nancy Treaster, and through our experiences, we’ve developed four tips we’re sharing with you.
- [4. Where Did They Go? Practical Tips To Prepare For — and Prevent — Wandering in Our Loved Ones With Diagnoses of Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/where-did-they-go-practical-tips-to-prepare-for-and-prevent-wandering-in-our-loved-ones-with-diagnoses-of-alzheimers-and-other-dementias/): You're going to wish you’d known the third tip for wandering outside in the very beginning! As caregivers for our families with dementia, we've learned that wandering is a common and potentially dangerous behavior. In this post, we'll share strategies for managing wandering both outside and inside the home. We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed ten tips to help you keep your loved one safe while giving you peace of mind.
- [3. Say What? Practical Tips for Communicating With Our Loved Ones Early in Their Alzheimer’s and Other Dementias Journeys](https://thecaregiversjourney.org/say-what-practical-tips-for-communicating-with-our-loved-ones-early-in-their-alzheimers-and-other-dementias-journeys/): Who knew being more positive in our communications would make such a difference? As caregivers for our husbands, parents, and other loved ones with types of dementia, we've learned communication is a constantly evolving process. Communication is not just what’s spoken. It’s all forms of communication. In the beginning of their diagnosis, it’s still natural for us to communicate with our loved one as we have for many years. It’s not yet natural for us to make sure they are understanding what we’re saying - or that we’re intentionally focusing on what they’re trying to communicate.  We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed four tips to help you in your early communication transition.
- [2. Don’t Say Remember! Practical Tips for Navigating Memory Loss In the Early Stages of Our Loved One’s Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/dont-say-remember-practical-tips-for-navigating-memory-loss-in-the-early-stages-of-our-loved-ones-alzheimers-and-other-dementias/): Does it feel like a punch in the gut every time you realize something new your loved one has forgotten? As caregivers for our husbands and parents with Alzheimer’s disease and other types of dementia, Nancy Treaster and I have learned that memory loss in the beginning of the journey can be challenging. One of our goals as caregivers is to help our care receivers maintain as much dignity and independence as possible. One of the ways we do this is by providing them support behind the scenes.
- [68. The First Six Steps to Take After a Dementia Diagnosis](https://thecaregiversjourney.org/68-the-first-six-steps-to-take-after-a-dementia-diagnosis/): “Your caregiving is responsible for the health and safety of two people — your loved one, and you. You can’t be a good caregiver if you’re running on fumes.” Nancy Treaster Did your loved one recently receive a diagnosis of dementia? Are you at a loss for what to do next? Maybe you’re overwhelmed because you can’t find the information you need, or maybe it’s the opposite, and you’re drowning in so many conflicting resources that you don’t know where to start. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of […]
- [68. Dementia Caregiving Roadmap V4 Steps 1-6 / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/68-dementia-caregiving-roadmap-v4-steps-1-6-alzheimers-and-other-dementias/): Did your loved one recently receive a diagnosis of dementia? Are you at a loss for what to do next? Maybe you’re overwhelmed because you can’t find the information you need — or maybe it’s the opposite, and you’re drowning in so many conflicting resources that you don’t know where to start. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how disorienting those first weeks after a diagnosis can be. That’s why we created the Navigating Dementia Caregiving Roadmap — 20 steps to guide you through your […]
- [67.  Show Up, Stay Present, Keep Finding Ways to Connect: Four Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/67-show-up-stay-present-keep-finding-ways-to-connect-four-tips-alzheimers-and-other-dementias/): “When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but I look back and think – this was a great experience and something I feel good about doing for the people I love.” – Nancy Treaster There’s a moment in dementia caregiving where you realize your relationship has fundamentally changed. Your loved one may no longer recognize your name, your face, or the decades you’ve shared together. How do you keep loving someone through […]
- [67. Love Beyond Memory: Four Tips for Showing Up, Staying Present, and Staying Connected](https://thecaregiversjourney.org/67-love-beyond-memory-four-tips-for-showing-up-staying-present-and-staying-connected/): “When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but when I look back, I think this was a great experience and something I feel good about doing for the people I love.” Nancy Treaster There’s a moment in dementia caregiving when you realize your relationship with your loved one has fundamentally changed. Your loved one may no longer recognize your name, your face, or the decades you’ve shared together. How do you keep […]
- [66. What Stage of Dementia Caregiving Are You in?](https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in/): “Our goal is to meet you exactly where you are in your caregiving journey and help you focus on what matters right now.” — Sue Ryan Have you ever felt overwhelmed searching for the right information at the right time, or found yourself drowning in conflicting resources that leave you more confused than when you started? You’re not alone. Dementia family caregiving is a long journey, and it looks very different depending on where you are in it. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we built the […]
- [66. What Stage of Dementia Caregiving Are You in? / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in-alzheimers-and-other-dementias/): Have you ever felt overwhelmed searching for the right information at the right time, or found yourself drowning in conflicting resources that leave you more confused than when you started? You’re not alone. Dementia family caregiving is a long journey, and it looks very different depending on where you are in it. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we built the Navigating Dementia Caregiving Roadmap to help you find the right resources at the right time. As with all our resources, it’s a free, 20-step roadmap available […]
- [65.  Help for Solo Caregivers: Four Resource Areas / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/65-help-for-solo-caregivers-four-resource-areas-alzheimers-and-other-dementias/): Do you feel completely alone in your caregiving journey? No family backup, friends have faded away, and you can’t afford professional help? You are not alone — and there is real help available, often at little or no cost. We are Elizabeth Miller of Happy Healthy Caregiver and Sue Ryan and Nancy Treaster of The Caregiver’s Journey. In this podcast we’ve joined forces with – together we’ve lived it, learned from it, and made it our mission to walk alongside family caregivers. We’re sharing four key resource areas that can provide real relief without breaking the bank.   Think about the […]
- [65. Help for Solo Caregivers: Four Resource Areas](https://thecaregiversjourney.org/65-help-for-solo-caregivers-four-resource-areas/): Do you feel completely alone in your caregiving journey? No family backup, friends have faded away, and you can’t afford professional help? You are not alone — and there is real help available, often at little or no cost. We are Sue Ryan and Nancy Treaster of The Caregiver’s Journey. In this post we’ve joined with Elizabeth Miller of Happy Healthy Caregiver. Together we’ve lived it, learned from it, and made it our mission to walk alongside family caregivers. We’re sharing four key resource areas that can provide real relief without breaking the bank. Think about the analogy of a frog in water. If a […]
- [64. Falling — Spot Risks, Stay Calm, Heal Afterwards: Five Essential Tips](https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-essential-tips/): “When families are prepared — physically, emotionally, logistically — they are able to handle these moments a lot differently. There’s less panic, less guilt, and a little bit more empowerment.” Dr. Taylor Rush One minute, everything’s fine. The next minute, your loved one is on the floor. If fall prevention isn’t on your radar yet, or if you’re waiting until after the first fall happens, you’re not alone. There is a lot you can do right now to be better prepared. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, […]
- [64. Falling - Spot Risks, Stay Calm, Heal Afterwards: Five Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-tips-alzheimers-and-other-dementias/): “When families are prepared — physically, emotionally, logistically — they are able to handle these moments a lot differently. There’s less panic, less guilt, and a little bit more empowerment.” — Dr. Taylor Rush   One minute, everything’s fine. The next minute, your loved one is on the floor. If fall prevention isn’t on your radar yet — or if you’re waiting until after the first fall happens — you’re not alone. But there’s a lot you can do right now to be better prepared.   We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s […]
- [63. Meaningful Conversation: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias-2/): “Once caregivers get it, they’re truly excited. To do this, you train yourself to be present in the moment, the now, and the imagination.” — Anne Basting Do you struggle to create meaningful connections with your loved one living with dementia? You’re not alone. Almost all of us do, and there are concrete tools you can learn right now to change this. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how isolating it can feel when conversations stall and connection seems just out of reach. Anne Basting is the founder […]
- [63. Meaningful Conversation: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias/): “Once caregivers get it, they’re like, ‘My gosh.’ You just have to train yourself to walk around the brick wall to the moment, the now, and the imagination.” — Anne Basting Do you struggle to create meaningful connections with your loved one living with dementia? Almost all of us do. You’re not alone — and there are concrete tools you can learn right now to change that. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how isolating it can feel when conversations stall and connection seems just […]
- [62. What Is a Virtual Dementia Tour? Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias-2/): “I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D. Have you ever wondered what it actually feels like to live with dementia? Do you find yourself struggling to understand why your loved one behaves the way they do, wishing you could see the world through their eyes- even for a moment? There’s a powerful tool that can help you do exactly this. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how much […]
- [62. What Is a Virtual Dementia Tour?: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias/): “I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D. Have you ever wondered what it actually feels like to live with dementia? Do you find yourself struggling to understand why your loved one behaves the way they do, wishing you could see the world through their eyes- even for a moment? There’s a powerful tool that can help you do exactly this. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how […]
- [61. Turn Your Wishes Into Reality: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias-2/): WOOP is a very practical technique for anything from emotions to something on your to-do list — it can be used for many different kinds of wishes.” — Donna Fedus How many times have you been told that taking care of yourself is really important — and felt overwhelmed just thinking about it? You are not alone in this struggle, and there is a simple, evidence-based process that can help. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how hard it can be to find time — […]
- [61. Turn Your Wishes Into Reality: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias/): “WOOP is a very practical technique for anything from emotions to something on your to-do list. It can be used for many different kinds of wishes.” — Donna Fedus How many times have you been told that taking care of yourself is really important — and felt overwhelmed just thinking about it? You are not alone and there is a simple, evidence-based process, that can help. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how hard it can be to find the time — and energy — […]
- [60. Three Tips for Using Cognitive Stimulation Therapy at Home](https://thecaregiversjourney.org/60-three-tips-for-using-cognitive-stimulation-therapy-at-home/): “While we can’t reverse aging, regular mental activity — including cognitive exercises and regular cognitive engagement — helps keep cognitive skills stronger for longer. It’s like exercising your body.” Dr. Daniel Fenton What if you could make small changes and have more intentional conversations with your loved one that actively stimulates their brain? You’re not doing one more thing, you’re simply being more deliberate about conversations you’re already having, while sneaking in more benefits along the way. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how meaningful it […]
- [60. Use Cognitive Simulation Therapy at Home: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/60-use-cognitive-simulation-therapy-at-home-three-essential-tips-alzheimers-and-other-dementias/): “While we can’t reverse aging, regular mental activity — these exercises, regular cognitive engagement — helps keep cognitive skills stronger for longer. It’s like exercising your body.” — Dr. Daniel Fenton What if you could make small changes and have more intentional conversations with your loved one that actively stimulate their brain? You’re not doing one more thing — you’re simply being more deliberate about conversations you’re already having and sneaking in more benefits along the way. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how meaningful […]
- [59. Protect Your Brain Health: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/59-protect-your-brain-health-three-essential-tips-alzheimers-and-other-dementias/): As a family caregiver, you spend so much time worrying about your loved one’s brain health. But what about your own? The good news is that there are real, evidence-backed steps you can take to improve your brain health and reduce your risk of cognitive decline — even in the midst of a demanding caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how easy it is to put yourself last. That’s why we’re sharing insights from Shelby Roberts, Senior Director of Public Health for the […]
- [59. Protecting Your Brain Health: Three Essential Tips for Dementia Caregivers](https://thecaregiversjourney.org/59-protecting-your-brain-health-three-essential-tips-for-dementia-caregivers/): “In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower. It’s the strength of the support network we build around us — and the health of our own brains.” Shelby Roberts Are you worried about your loved one’s brain health but neglecting your own? Do you think you don’t have time to focus on yourself? Here’s some encouraging news: research shows that even modest lifestyle changes can significantly improve your brain health and reduce your risk of cognitive decline. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of […]
- [58. What Is a Certified Senior Advisor: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias-2/): “I didn’t know what I didn’t know. I didn’t know how to take care of my parents. I wanted the best for them, but I couldn’t figure it out.” — Cynthia Perthuis Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You’re not alone if the answer is no — and there are clear steps you can take to get the right help at the right time. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how […]
- [58. What Is a Certified Senior Advisor: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias/): Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You’re not alone if the answer is no — and there are clear steps you can take to get the right help at the right time. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how overwhelming it can be to recognize when something has changed and know where to turn next. We’re sharing insights from Cynthia Perthuis, principal owner of Senior Care Authority in Southwest Florida […]
- [57. Find The Right Support Group: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/57-find-the-right-support-group-four-essential-tips-alzheimers-and-other-dementias/): “Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin Do you wonder if support groups are right for you? Do you know how to find one that fits your needs? Are you feeling overwhelmed and isolated in your caregiving role? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that support groups can be transformative resources on this journey. In this post, we’re sharing insights from Kim Franklin, Senior Program […]
- [57. Finding the Right Support Group: 4 Essential Tips](https://thecaregiversjourney.org/57-finding-the-right-support-group-4-essential-tips/): “Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin Do you wonder if support groups are right for you? Do you know how to find one that fits your needs? Are you feeling overwhelmed and isolated in your caregiving role? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that support groups can be transformative resources on this journey. In this post, we’re sharing insights from Kim Franklin, Senior Program Manager with […]
- [56. When Your Spouse Becomes Your Patient / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/56-when-your-spouse-becomes-your-patient-alzheimers-and-other-dementias/): “One of the hardest parts in spousal caregiving is accepting that we’re no longer just partners. We’re now caregiver and care receiver. The loss of our emotional and physical partner and the emotional responsibilities we’re taking on can really take an enormous toll.” Are you struggling to find balance between being a spouse and being a caregiver? Do you find yourself wondering when the shift happened—when your partner became your patient? Have you noticed yourself “forgetting to be a spouse” because you’re so focused on getting the caregiving right? We are Sue Ryan and Nancy Treaster. As caregivers for our loved […]
- [56. When Your Spouse Becomes Your Patient: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/56-when-your-spouse-becomes-your-patient-four-essential-tips-alzheimers-and-other-dementias/): “One of the hardest parts in spousal caregiving is accepting that we’re no longer just partners. We’re now caregiver and care receiver. The loss of our emotional and physical partner and the additional responsibilities we’re taking on can really take an enormous toll.” Nancy Treaster Are you struggling to find balance between being a spouse and being a caregiver? Have you noticed yourself “forgetting to be a spouse” because you’re so focused on getting the caregiving right? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve experienced firsthand the complex […]
- [55. Is It an Early Sign of Dementia? Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias-2/): “What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos Are you concerned that your loved one is showing early signs of dementia? Do you find yourself noticing changes but unsure whether they’re significant? You’re not alone in this uncertainty, and there are clear steps you can take to address your concerns. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how challenging it […]
- [55. Is It an Early Sign of Dementia? Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias/): “What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos Are you concerned that your loved one is showing early signs of dementia? Do you find yourself noticing changes but unsure whether they’re significant? You’re not alone in this uncertainty, and there are clear steps you can take to address your concerns. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how challenging […]
- [54. Why the Right Dementia Diagnosis Matters: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/54-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias-2/): “An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN Your loved one has been diagnosed with dementia… but do you ever wonder if they’ve been diagnosed with the correct type? Do you find yourself thinking: “This diagnosis doesn’t quite fit what I’m seeing.” You’re not alone. Getting the correct diagnosis opens the right doors to support, care, and community that you might not have known existed. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned […]
- [54. Why the Right Dementia Diagnosis Matters: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/54-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias/): “An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN Your loved one has been diagnosed with dementia… but do you ever wonder if they’ve been diagnosed with the correct type? Do you find yourself thinking: “This diagnosis doesn’t quite fit what I’m seeing.” You’re not alone. Getting the correct diagnosis opens the right doors to support, care, and community that you might not have known existed. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve […]
- [53. The Dementia Care Financial Conversation: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/53-the-dementia-care-financial-conversation-five-essential-tips-alzheimers-and-other-dementias-2/): “Dementia is not just a medical journey, but it’s a financial and emotional one.” – Devon Banning, CFP   Are you avoiding the financial conversation with your loved one because it feels uncomfortable or overwhelming? Do you find yourself wondering how you’ll afford care as your loved one’s needs increase?  Are you concerned about making the right financial decisions during this challenging time? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know that money is often the last conversation we want to have, but it’s inevitable. We have […]
- [53: The Dementia Care Financial Conversation: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/53-the-dementia-care-financial-conversation-five-essential-tips-alzheimers-and-other-dementias/): “Dementia is not just a medical journey, but it’s a financial and emotional one.” — Devon Banning, CFP, Moran Wealth Management Are you avoiding the financial conversation with your loved one because it feels uncomfortable or overwhelming? Do you find yourself wondering how you’ll afford care as your loved one’s needs increase? Are you concerned about making the right financial decisions during this challenging time? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know that money is often the last conversation we want to have, but… it’s inevitable. We […]
- [52. Preparing for Stormy Weather: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/52-preparing-for-stormy-weather-four-essential-tips-alzheimers-and-other-dementias/): “Early decision making is very key in any type of storm preparedness. Timing, knowing what the county alerts are, and making sure you have a communication plan.” — Celeste Lynch, Executive Director, Moorings Park Grand Lake Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential power outages and cell tower failures? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand […]
- [52. Home or Community — Preparing for Stormy Weather / Four Essential Tips](https://thecaregiversjourney.org/52-home-or-community-preparing-for-stormy-weather-four-essential-tips/): “Early decision making is key in any type of storm preparedness. Timing, knowing what your city/county alerts are, and making sure you have a communication plan, is vital.” — Celeste Lynch, Executive Director, Moorings Park Grand Lake Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential power outages and cell tower failures? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand […]
- [51. Dementia Caregiving and TV: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/51-dementia-caregiving-and-tv-four-essential-tips-alzheimers-and-other-dementias-2/): “The difference between TV as comfort and TV as chaos isn’t the screen—it’s understanding how the changing brain experiences what’s on it.” Do you rely on television to help occupy your loved one’s time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that what soothes us as caregivers can actually cause distress for people […]
- [51. Dementia Caregiving and TV: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/51-dementia-caregiving-and-tv-four-essential-tips-alzheimers-and-other-dementias/): “The difference between TV as comfort and TV as chaos isn’t the screen — it’s understanding how the changing brain experiences what’s on it.” Allyson Schrier Do you rely on television to help occupy your loved one’s time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that what soothes us as caregivers can actually cause […]
- [50. Family Dynamics in Caregiving: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias-2/): “Family caregiving is not simply about caring for the person who’s receiving care, it’s also about caring for everyone in the family through this whole process.” Dr. Barry Jacobs Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You’re not alone, and there’s a path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that transforming family dynamics into effective teamwork is […]
- [50. Family Dynamics in Caregiving: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/): Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You’re not alone, and there’s a path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey. In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings […]
- [49. Navigating Death Related Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/49-navigating-death-related-responsibilities-four-essential-tips-alzheimers-and-other-dementias-2/): Do you know what you need to do immediately after your care receiver passes? Many caregivers don’t. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities? You’re not alone. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve navigated the challenging process of handling death-related responsibilities firsthand. Between us, we’ve experienced the loss of multiple loved ones. We’ve learned valuable lessons about what needs to be done — and when. We’re bringing these tips recognizing your care receiver […]
- [49. Navigating Death Related Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/49-navigating-death-related-responsibilities-four-essential-tips-alzheimers-and-other-dementias/): Do you know what you need to do immediately after your loved one passes? Many caregivers don’t. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve navigated the challenging process of handling death-related responsibilities firsthand. Between us, we’ve experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when.
- [48. Are You Part of the Sandwich Generation? Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/48-are-you-part-of-the-sandwich-generation-five-essential-tips-alzheimers-and-other-dementias/): Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs? My name is Sue Ryan. As a caregiver for loved ones with Alzheimer’s and other types of dementia, I understand the unique challenges faced by those in the sandwich generations. I recently spoke with Christy Byrne Yates, a licensed educational psychologist and author of “Building a Legacy of Love: Thriving in the Sandwich Generation.” Christy has personally navigated the challenges of caring for aging parents while raising her own children, and she brings […]
- [48. Navigating the Sandwich Generation’s’: Five Essential Tips for Thriving While Caring for Multiple Generations](https://thecaregiversjourney.org/48-navigating-the-sandwich-generations-five-essential-tips-for-thriving-while-caring-for-multiple-generations/): “Think about the twilight zone of handing your teenagers the car keys while at the same time trying to wrestle them away from your aging parents who should not drive. You’re sandwiched in the middle of that time of someone gaining independence and those losing independence and you’re navigating it all.” Christy Byrne Yates Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs? My name is Sue Ryan. As a caregiver for loved ones with Alzheimer’s and other types of dementia, I understand […]
- [47. Navigating Grief Throughout Caregiving: Six Essential Tips / Alzheimer's and Other Dementias](https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias-2/): Grief in caregiving doesn’t wait until our loved one is gone. It’s with us throughout the entire journey — sometimes like a wave that knocks us down. Grief is teaching us lessons we never expected to learn. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that grief doesn’t only come after our loved one passes away. It’s present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way. The good news is that understanding grief — recognizing it, honoring it, […]
- [47. Navigating Grief Throughout Caregiving: Six Essential Tips / Alzheimer's and Other Dementias](https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias/): Have you noticed yourself feeling sad when your loved one can’t remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you may not even realize it’s happening. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that grief doesn’t only come after our loved one passes away. It’s present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way. The good news is that understanding grief—recognizing it, honoring it, […]
- [46. Later On: The Final Phase of Your Dementia Caregiving Journey — Steps 18–20](https://thecaregiversjourney.org/46-later-on-the-final-phase-of-your-dementia-caregiving-journey-steps-18-20/): “In this stage, caregiving actually in some areas becomes easier because we’re now in control. We’re not struggling with them. We’ve just taken it over. On the other hand, it’s harder in some areas.” Sue Ryan and Nancy Treaster Have you reached the point where you’re now fully responsible for your loved one’s care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You’ve entered what we call “later on” — the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention […]
- [46. Navigating Dementia Caregiving Roadmap: Later On Steps 18-20 / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/46-navigating-dementia-caregiving-roadmap-later-on-steps-18-20-alzheimers-and-other-dementias/): “In this stage, caregiving actually in some areas becomes easier because we’re now in control. We’re not struggling with them. We’ve just taken it over. On the other hand, it’s harder in some areas.” Have you reached the point where you’re now fully responsible for your loved one’s care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You’ve entered what we call “later on”—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning. We are Sue Ryan […]
- [45. Dementia Caregiving Roadmap Steps 11–17 The “Messy Middle: It’s Time to Assert More Control, It’s Time for More Support](https://thecaregiversjourney.org/45-dementia-caregiving-roadmap-steps-11-17-the-messy-middle-its-time-to-assert-more-control-its-time-for-more-support/): “In the “messy middle”, there are things your care receiver is no longer going to be able to manage on their own. What we want for them, in every possible opportunity, is to have them maintain their dignity and independence as much as possible, while asserting control when needed.” Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You’re not alone! […]
- [45. Navigating Dementia Caregiving Roadmap: Messy Middle Steps 11-17 / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/navigating-dementia-caregiving-roadmap-messy-middle-steps-11-17-alzheimers-and-other-dementias/): “In the “messy middle”, there are things your care receiver is no longer going to be able to manage on their own. What we want for them, in every possible opportunity, is to have them maintain their dignity and independence as much as possible, while asserting control when needed.” Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You’re not alone! […]
- [44. Navigating Dementia Caregiving Roadmap: In the Beginning Steps 7–10 /Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias-2/): Knowledge is power. The more you understand about dementia caregiving, the more confident you’ll become, the more patience you’ll have with your care receiver, and the greater peace of mind you’ll experience. Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide: Navigating Dementia Caregiving Roadmap: Your Resource Roadmap for Every Stage? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes’ to any of these, you’re in the right place for the next phase of the […]
- [44. Navigating Dementia Caregiving Roadmap: In the Beginning Steps 7-10 / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias/): Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes’, you’re in the right place for the next phase of the dementia “In the Beginning” journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that building knowledge, and preparing for progression, are […]
- [43. Navigating Dementia Caregiving Roadmap: In the Beginning Steps 1-6 / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/43-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-1-6-alzheimers-and-other-dementias/): Have you ever felt overwhelmed because you don’t know what information you need, can’t find reliable sources, or feel frustrated by conflicting advice? You’re not alone — AND — there’s a clear path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently worked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, to create the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for […]
- [43. Dementia Caregiving Roadmap Steps 1–6 In The Beginning: First Steps, Right After the Diagnosis](https://thecaregiversjourney.org/43-dementia-caregiving-roadmap-steps-1-6-in-the-beginning-first-steps-right-after-the-diagnosis/): If you’ve ever felt overwhelmed because you don’t know what information you need, can’t find reliable sources, or feel frustrated by too much conflicting advice, you’re not alone — AND — there’s a clear path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. This led us to create the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. In this blog post are the first six essential steps to […]
- [42. Understanding Palliative Care: When to Call It In and How It Can Support Your Caregiving Journey](https://thecaregiversjourney.org/42-understanding-palliative-care-when-to-call-it-in-and-how-it-can-support-your-caregiving-journey/): “Palliative care is a holistic approach to a life-limiting disease that focuses not just on the patient, but on supporting the caregiver and entire family through education, collaboration, and comprehensive planning.” Dawn Kolderman Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You’re not alone – and there’s specialized help available that many family caregivers don’t fully understand. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we both wish we had understood […]
- [42. When to Call in Palliative Care: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/42-when-to-call-in-palliative-care-four-essential-tips-alzheimers-and-other-dementias/): Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You’re not alone – and there’s specialized help available that many caregivers don’t fully understand. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we both wish we had understood what palliative care is and how to leverage it earlier in our journeys. Unfortunately, when palliative care was first explained to us, it was explained incorrectly, and neither of us took advantage of […]
- [41. Aligning Work and Caregiving Responsibilities: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/41-aligning-work-and-caregiving-responsibilities-four-essential-tips-alzheimers-and-other-dementias/): Have you ever thought, “I wish I knew how to have a constructive conversation with my manager about how to align my work responsibilities and my caregiving responsibilities?” Today we’re sharing strategies to help working family caregivers thrive at both work and at home. We’re sharing four tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how caregivers often feel torn between their responsibilities at home and their professional responsibilities, which they’re trying desperately to fulfill, often without support.
- [41. Aligning Work and Caregiving Responsibilities: Four Essential Tips](https://thecaregiversjourney.org/41-aligning-work-and-caregiving-responsibilities-four-essential-tips/): Have you ever thought: “I wish I knew how to have a constructive conversation with my manager about how to align my work responsibilities and my caregiving responsibilities.”? Today we’re sharing strategies to help working family caregivers thrive at both work and at home. We’re sharing four tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how caregivers often feel torn between their professional responsibilities and their responsibilities at home – which they’re constantly juggling – often without the support they need. According to the Alzheimer’s Association, of […]
- [40. Create Your Personal Support Network: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/40-create-your-personal-support-network-five-essential-tips-alzheimers-and-other-dementias/): “In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower, it’s the strength of the support network we build around us.” Sue Ryan   Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don’t have time to get everything done.” or “I should be able to do this myself.”? You’re not alone, and there’s a better way forward.   We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned building a strong personal support network is crucial for sustainable […]
- [40. Building Your Personal Caregiving Support Network](https://thecaregiversjourney.org/40-building-your-personal-caregiving-support-network/): “In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower, it’s the strength of the support network we build around us.” Sue Ryan Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don’t have time to get everything done.” or “I should be able to do this myself.”? You’re not alone, and there’s a better way forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned building a strong personal support network is crucial for sustainable caregiving. Studies show that […]
- [39. Is the Medicare GUIDE Program for You?](https://thecaregiversjourney.org/39-is-the-medicare-guide-program-for-you/): We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are excited to have Nurse Practitioner Amy Imes, the program lead for the Medicare GUIDE Program at Emory University, join us to share insights about the new Medicare GUIDE program (Guiding an Improved Dementia Experience). GUIDE is a U.S. Medicare pilot program, with the goal of providing better support and resources for persons living with dementia and their caregivers. With big announcements happening on July 1, 2025, we’re bringing you this overview so you can understand what GUIDE is and how to know if […]
- [39. Is the Medicare GUIDE Program for you?: Three Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/39-is-the-medicare-guide-program-for-you-three-essential-tips-alzheimers-and-other-dementias/): Is the Medicare GUIDE Program for you? Today Nancy and I are sharing insights from Amy Imes of Emory’s Integrated Memory Care about the new Medicare Program GUIDE. We’re going to help you understand what it is and how to know if you can leverage it. We’re sharing three tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are so excited to share this information with you. This is an awesome opportunity to learn about the US Medicare GUIDE Program. With big announcements happening on July 1, 2025, […]
- [38. Studying Sleep Early in the Dementia Journey: Five Essential Tips](https://thecaregiversjourney.org/38-studying-sleep-early-in-the-dementia-journey-five-essential-tips/): Do you wish you could get a good night’s sleep? We do too! We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we appreciate the insights Dr. Glenna Brewster, PhD, RN, FNP-BC, Assistant Professor at Nell Hodgson Woodruff School of Nursing at Emory University, shared for all of us about her sleep study titled SLEEPMATE, and how we can all create good sleep habits. Dr. Glenna Brewster’s background is impressive, and her passion for good sleep is inspiring! In addition to her responsibilities as a professor, she is a nurse scientist, family […]
- [38. Studying Sleep Early in the Dementia Journey: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/38-studying-sleep-early-in-the-dementia-journey-five-essential-tips-alzheimers-and-other-dementias/): Do you wish you could get a good night’s sleep? We do too!   We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we appreciate the insights Dr. Glenna Brewster, PhD, RN, FNP-BC, Assistant Professor at Nell Hodgson Woodruff School of Nursing at Emory University, shared for all of us about her sleep study titled SLEEPMATE, and how we can all create good sleep habits.   Dr. Glenna Brewster’s background is impressive, and her passion for good sleep is inspiring! In addition to her responsibilities as a professor, she is […]
- [37. Studying Experienced Caregivers: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips-alzheimers-and-other-dementias/): “When it comes to caregiving, the assumption about being able to take what we’ve learned and just naturally grow is not always going to be true.” How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered “yes,” you might be surprised by what research is revealing about experienced caregivers. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, both of us have been caregivers more than once, […]
- [37. Studying Experienced Caregivers: Four Essential Tips](https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips/): “If you’ve cared for one person with dementia, you’ve cared for one person with dementia. For those of us who find ourselves caring again — on a second, third, or even fourth journey — we learn each journey is different. We’re continuously learning, navigating new challenges, and feeling new emotions.” Sue Ryan How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered “yes,” you might be surprised by what research is revealing about experienced caregivers. We are Sue […]
- [36. Learn to Navigate Support Systems: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips-alzheimers-and-other-dementias/): “An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger   Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you’ll be learning about valuable opportunities to strengthen your caregiving journey.   We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are continuously learning new ways to support our health […]
- [36. Learn to Navigate Support Systems: Four Essential Tips](https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips/): “An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you’ll be learning about valuable opportunities to strengthen your caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are continuously learning new ways to support our health and well-being, […]
- [35. Build a Partnership With Your Care Community: Six Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/35-build-a-partnership-with-your-care-community-six-essential-tips-alzheimers-and-other-dementias/): Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build a collaborative relationship with the care team is crucial for ensuring the best outcomes for your loved one. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that creating a true partnership with care community staff can dramatically improve quality of care and reduce stress for everyone involved. We recently spoke with James Lee, CEO and co-founder of Bella Groves, an award-winning memory care community. With over […]
- [35. Building a Partnership with Your Care Community Team: 6 Essential Tips](https://thecaregiversjourney.org/35-building-a-partnership-with-your-care-community-team-6-essential-tips/): “It isn’t us versus them, it’s us collectively versus dementia.” — James Lee Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build your collaborative relationship with the care team is crucial for ensuring the best outcomes for you, your care receiver, and the care team. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned creating a true partnership with the care community team can significantly improve the quality of care while reducing stress for everyone involved. We recently spoke […]
- [34. Introducing and Integrating New Caregivers: 6 Essential Tips](https://thecaregiversjourney.org/34-introducing-and-integrating-new-caregivers-6-essential-tips/): “Sometimes it’s easy. Sometimes it’s hard.” Adding a new caregiver to your support team can be a challenging transition, whether they’re coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer’s or other types of dementia, as changes in routine can cause confusion and resistance. If your loved one doesn’t think they need help or they don’t want help (and yes, many don’t), don’t give up! Be patient. Nancy Treaster shares: “My husband told the new […]
- [34. Introduce and Integrate a Caregiver: Six Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/34-introduce-and-integrate-a-caregiver-six-essential-tips-alzheimers-and-other-dementias/): Adding a new caregiver to your support team can be a challenging transition, whether they’re coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer’s or other types of dementia, as changes in routine can cause confusion and resistance.   If your loved one doesn’t think they need help or they don’t want help (and yes, many don’t), don’t give up! Be patient. Nancy Treaster shares: “My husband told the new caregiver for at least the […]
- [33. How To Create a Care Plan: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias/): Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one […]
- [33. Creating a Care Plan: 5 Essential Tips for Caregivers](https://thecaregiversjourney.org/33-creating-a-care-plan-5-essential-tips-for-caregivers/): “The care plan is only as valuable as the information you put into it.” — Amanda Lukoff Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder […]
- [32. Navigating the Caregiver Hiring Process: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/): When the time comes to bring professional caregiving support into your loved one’s life, the process can feel overwhelming. Whether you’re hiring a caregiver for home care or to complement care in a community setting, understanding how to find, evaluate, and select the right person is crucial for both your peace of mind and your loved one’s well being. We are Nancy Treaster and Sue Ryan, we’ve developed five essential tips for hiring a paid caregiver, based on real experiences and practical advice from caregiving experts. These insights will help you navigate this important transition with confidence and clarity.
- [32. Five Essential Tips for Hiring a Paid Caregiver](https://thecaregiversjourney.org/32-five-essential-tips-for-hiring-a-paid-caregiver/): Finding the Right Support for Your Loved One’s Care Needs When the time comes to bring professional caregiving support into your loved one’s life, the process can feel overwhelming. Whether you’re hiring a caregiver for home care or to complement care in a community setting, understanding how to find, evaluate, and select the right person is crucial for both your peace of mind and your loved one’s well being. We are Nancy Treaster and Sue Ryan, we’ve developed five essential tips for hiring a paid caregiver, based on real experiences and practical advice from caregiving experts. These insights will help you […]
- [31. They Know What We Don’t, Elder Law Attorneys: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/): We don’t know what we don’t know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you’re dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey. In this episode, we’ll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with […]
- [31. The Importance of Elder Law Expertise in Navigating Aging-Related Legal Issues: What You Need to Know](https://thecaregiversjourney.org/the-importance-of-elder-law-expertise-in-navigating-aging-related-legal-issues-what-you-need-to-know/): We don’t know what we don’t know. Elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you’re dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how — and when — to work with an elder law attorney can make all the difference in your journey. We’re exploring four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master […]
- [30. Finding Peace in Preparation: End of Life Service Preplanning: Eight Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/finding-peace-in-preparation-end-of-life-service-preplanning-eight-essential-tips-alzheimers-and-other-dementias/): When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief. We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon, who has more than 45 years of experience in the funeral profession, including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight […]
- [30. Planning Ahead: 8 Essential Tips for Pre-Planning an End of Life Service](https://thecaregiversjourney.org/planning-ahead-8-essential-tips-for-pre-planning-an-end-of-life-service/): When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief. We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon, who has more than 45 years of experience in the funeral profession, including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight essential tips […]
- [29. When To Call In Hospice: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/when-to-call-in-hospice-four-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that there are many misconceptions about hospice care. Today, we’re joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they’ve developed four essential tips to help you navigate this important transition in your caregiving journey.
- [29. Understanding Hospice Care: When and How to Begin the Hospice Journey in Alzheimer’s and Dementia Care](https://thecaregiversjourney.org/understanding-hospice-care-when-and-how-to-begin-the-hospice-journey-in-alzheimers-and-dementia-care/): Who knew understanding hospice could make such a difference in providing comfort and care for our loved ones? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned there are many misconceptions about hospice care. Nancy Heyerman and Brenda Kizzire collectively bring more than fifty years experience as hospice nurses to help clarify what hospice actually is — and when to consider it. Before sharing the four tips they’ve developed to help us navigate this impactful transition in our caregiving journeys it’s helpful to understand what hospice means, because many people think hospice is solely about […]
- [28. Time for a Change? Tips When Considering Home and Community Living Options: Five Essential Tips / Alzheimer's and Other Dementias](https://thecaregiversjourney.org/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often face the challenging question: “Is it time to change my care receiver’s living situation?” We are Nancy Treaster and Sue Ryan, and through our experiences, we’ve developed five essential tips to help you navigate this complex decision-making process.
- [28. Is It Time? Evaluating Home and Community Living Options for Your Loved One with Alzheimer’s or Dementia](https://thecaregiversjourney.org/is-it-time-evaluating-home-and-community-living-options-for-your-loved-one-with-alzheimers-or-dementia/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often face the challenging question: “Is it time to change my care receiver’s living situation?” We are Nancy Treaster and Sue Ryan, and through our experiences, we’ve developed five essential tips to help you navigate this complex decision-making process. Understanding the Decision-Making Framework Before diving into our tips, it’s important to understand this isn’t a one-time decision. It’s an ongoing process of evaluation and adjustment. Key points to consider: Multiple Inflection Points: The need for reevaluation comes from a variety of places such as changes in medication, […]
- [27. The Realities of Caregiver Self-Care: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/): When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities! Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways to maintain your own wellbeing while caring for others.
- [27. The Reality of Caregiver Self-Care: Moving Beyond Good Advice](https://thecaregiversjourney.org/the-reality-of-caregiver-self-care-moving-beyond-good-advice/): Self-care is anything that is going to provide me emotional or physical energy, anything that is going to provide peace of mind, and anything that offers just pure joy. — Elizabeth Miller, Founder of Happy Healthy Caregiver When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities! Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways […]
- [26. Calming Caregiver Worries: Creating Your Effective Family Emergency Plan](https://thecaregiversjourney.org/calming-caregiver-worries-creating-your-effective-family-emergency-plan/): “Every worry needs a plan. We can name our worry around “Who’s my backup?, or “What do I do in case of an emergency?”, and then we can really start thinking through “What’s our plan for this?”” — Denise Brown, Founder, Caring Our Way Community When you’re caring for a family member with Alzheimer’s or another type of dementia, worries can keep you up at night — but they don’t help you. Through our conversation with Denise Brown, we’ve learned having a solid emergency plan helps calm your worries, reduce your fears, and provide you with peace of mind. Here’s your guide to creating […]
- [26. Are You Ready for an Emergency? Get a Plan!: Four Essential Tips / Alzheimer's & Other Dementias](https://thecaregiversjourney.org/are-you-ready-for-an-emergency-get-a-plan-four-essential-tips-alzheimers-other-dementias/): When you’re caring for a family member with Alzheimer’s or another type of dementia, worries can keep you up at night — but they don’t help you. Through our conversation with Denise Brown, we’ve learned having a solid emergency plan helps calm your worries, reduce your fears, and provide you with peace of mind.  
- [25. Supporting Your Parent Through Their Caregiving Journey: Six Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/supporting-your-parent-through-their-caregiving-journey-six-essential-tips-alzheimers-and-other-dementias/): When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we’ve developed six essential tips to help you support your parent as they take on the role of primary caregiver.
- [25. Supporting Your Parent as They Begin Their Caregiving Journey](https://thecaregiversjourney.org/supporting-your-parent-as-they-begin-their-caregiving-journey/): When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we’ve developed six helpful tips to help you support your parent as they take on the role of primary caregiver. Understanding the Shifting Dynamic Parents often begin their caregiving journey wanting to protect their children from burden, just as they’ve done throughout their lives. Their intentions are good. They may feel they ‘should’ handle everything independently, not wanting to appear incapable or impose […]
- [24. Valuable Updates on Oral Care for People with Dementia](https://thecaregiversjourney.org/valuable-updates-on-oral-care-for-people-with-dementia/): “I discovered a growth on his gum that was only slightly smaller than a marble. That’s when I realized dental care involves much more than just brushing teeth.” As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’re continuously learning and adapting our care approaches. Through recent experiences, we’ve discovered important new aspects of oral care we believe are helpful for other caregivers and care receivers on their journey. Throughout our caregiving journeys, we’re continuously learning. With our commitment to bringing you practical tips and candid conversations, we recognize the importance of updating what we have in […]
- [24. Dental Care Update: Three New Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/dental-care-update-three-new-tips-alzheimers-and-other-dementias/): “I discovered a growth on his gum that was only slightly smaller than a marble. That’s when I realized dental care involves much more than just brushing teeth.”   As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’re continuously learning and adapting our care approaches. Through recent experiences, we’ve discovered important new aspects of dental care that we believe could help other caregivers on their journey.
- [23. Delusion Support: Six Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/delusion-support-six-essential-tips-alzheimers-and-other-dementias/): When your loved one experiences delusions or hallucinations for the first time, it can be frightening and overwhelming for everyone involved. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned how to navigate these challenging moments.
- [23. Dementia’s Challenging Moments: A Caregiver’s Guide to Delusions and Hallucinations](https://thecaregiversjourney.org/dementias-challenging-moments-a-caregivers-guide-to-delusions-and-hallucinations/): When your loved one experiences delusions or hallucinations for the first time, it can be frightening and overwhelming for everyone involved. As caregivers for our loved ones with Alzheimer’s and other types of dementia who have navigated these challenging moments, we’ve learned preparation and understanding make all the difference. Before we share our tips, we’re sharing the definitions of delusions and hallucinations so you know the difference between them. According to the National Institute of Health: Delusions are thoughts — false beliefs held strongly despite evidence to the contrary. Hallucinations are sensory experiences — when the person sees, hears, smells, tastes, […]
- [22. Creating Engaging Activities for People Living with Dementia](https://thecaregiversjourney.org/creating-engaging-activities-for-people-living-with-dementia/): Instead of trying to reclaim what dementia takes away, embrace the present — what your care receiver has access to now. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today. Understanding Activity Engagement in Dementia Care From the moment of diagnosis, we need to shift our focus from what our care receivers used […]
- [22. Creating Engaging Activities: Three Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/creating-engaging-activities-three-tips-alzheimers-and-other-dementias/): As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today.
- [21. Beyond Bath Sets: Your Guide to Purposeful Caregiver Gifts](https://thecaregiversjourney.org/beyond-bath-sets-your-guide-to-purposeful-caregiver-gifts/): “If you give me a spa certificate but no gift of time to go with it, I’ll probably never use it.” As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated! Through our experiences and what we’ve learned from others on their caregiving journeys, we’ve developed five important categories of gifts that truly make a difference in a caregiver’s life. Understanding Gift-Giving for Caregivers From the moment the diagnosis is received, caregiving becomes a 24/7 responsibility. Caregivers often lose their sense of self, giving up hobbies and […]
- [21. Meaningful Caregiver Gifts: Five Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/meaningful-caregiver-gifts-five-essential-tips-alzheimers-and-other-dementias/): “If you give me a spa certificate but no gift of time to go with it, I’ll probably never use it.” As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated! Through our experiences and what we’ve learned from others on their caregiving journeys, we’ve developed five important categories of gifts that truly make a difference in a caregiver’s life.
- [20. Medication Management Matters: Your Key Role in Dementia Care](https://thecaregiversjourney.org/medication-management-matters-your-key-role-in-dementia-care/): “I wish I’d started monitoring my husband’s medication sooner.” As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that medication management becomes increasingly challenging. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you support your care receiver with medication management. Understanding Medication Management in Dementia Care Beginning the moment of the diagnosis, you become the eyes and ears for your loved one. Healthcare providers rely on you to monitor daily medication effects and raise concerns about necessary adjustments. This responsibility requires […]
- [20. Medication Management: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/medication-management-four-essential-tips-alzheimers-and-other-dementias/): "I wish I had started monitoring my husband's medication sooner than I did."  As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that medication management becomes increasingly challenging.
- [19. Should We Stay or Should We Go? Making Travel Decisions in Dementia Care](https://thecaregiversjourney.org/should-we-stay-or-should-we-go-making-travel-decisions-in-dementia-care/): “We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!”    We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip.
- [19. Traveling: Four Essential Tips / Alzheimer’s and Other Dementias](https://thecaregiversjourney.org/traveling-four-essential-tips-alzheimers-and-other-dementias/): “We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!” We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip.

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