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Support Groups and Helplines
Alzheimer’s Association Support Group Finder
The Alzheimer's Association leads the way to end Alzheimer's and all other dementia. The Alzheimer's Association offers a variety of support groups for many of types of dementia.
The Alzheimer’s Association 24/7 helpline in the US: 1-800-272-3900.
Dementia Minds Online Support Groups
Dementia Minds offers online support groups for people living with dementia. Their goals are to deliver hope, challenge stigma, and empower people everywhere to live well with dementia.
AFA Virtual Dementia Support Groups
The Alzheimer's Foundation of America offers free Alzheimer’s and dementia support groups, facilitated by AFA’s licensed social workers who are all specifically trained in dementia care.
AFA's Helpline - 9am to 9pm ET/ 7 days a week: 1-866-232-8484. Webchat available, bottom right of webpage.
AFTD Support Group Finder
FTD is also frequently referred to as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Pick's disease. FTD is the most common form of dementia for people under age 60.
AFTD's Helpline - Monday - Friday from 9am to 5pm ET: 1-866-507-7222.
Lewy Body Dementia Association Support Group Finder
LBD is the second most common form of neurodegenerative dementia, after Alzheimer’s disease. LBD is an umbrella term for a type of dementia associated with the presence of Lewy bodies (abnormal deposits of a protein called alpha-synuclein) in the brain.
Lewy Body Dementia Association Helpline - Monday - Friday from 9am to 5pm ET: 1-800-539-9767.
Training and Programs
Caregiver Training
Savvy Caregiver
Savvy Caregiver is recognized nationally as a leading evidence-based dementia family caregiver training program. Savvy programs are designed to provide the most relevant dementia knowledge, skills, and mastery to support family members as they provide care for their relative or friend living with dementia.
Second Wind Dreams Virtual Dementia Tour
The Virtual Dementia Tour® (VDT) is the original patented, evidence-based scientific method of building a greater understanding of dementia by building awareness and empathy in individuals caring for people living with dementia.
Savvy Caregiver Advanced Program
After completing Savvy Caregiver, family caregivers often ask if there is additional programming they can complete to continue their educational journey. Savvy Advanced is a 4-week program designed for caregivers who have already completed the Savvy Caregiver Foundational or Savvy Express programs.
Caregiving Programs
Best Programs for Dementia Caregiving
Enter your zip code to find Dementia Care Programs approved by Best Programs for Caregiving. Your results may include programs offered by local organizations, as well as other programs that are offered nationwide and serve your area by phone or online.
Books, Articles, and Podcasts
Read
Mayo Clinic Living with Dementia: A Guide to Caregiving and Support
This special issue from the medical experts at Mayo Clinic shows how dementia patients and their caregivers can maximize their time and get the most out of life. Living with Dementia offers valuable advice to help patients and caregivers achieve a high quality of life while adjusting to the emotional and practical challenges of living with the disease.
AARP article: How To Manage Mourning a Loss Before It Happens
There are two kinds of grief. The one that gets the most attention is conventional grief — the shock, anger, disbelief and other feelings which happen after a loss. Anticipatory grief, on the other hand, is a reaction — often with similar emotions to conventional grief — that happens when an imminent loss is on the horizon.
The AARP Caregiver Answer Book
If you’re among the millions of people annually who take on the role of providing unpaid care to family, friends, or neighbors, you are sure to face tough questions. Husband-and-wife psychologists Barry J. Jacobs and Julia L. Mayer--who have counseled family caregivers for over 30 years and cared for their own aging parents for a decade--have answers.
Our Journey of Love: 5 Steps to Navigate Your Care Giving Journey
Are you in a caregiving role and feeling exhausted mentally, physically, or emotionally? Do you feel like you should be doing more and aren’t sure what? Are you overwhelmed and not sure what to expect next? Our Journey of Love - 5 Steps to Navigate Your Caregiving Journey shares lessons, tips & tricks learned by Sue Ryan over more than thirty years in roles of caregiving.
Listen
Happy Healthy Caregiver Podcast
Hosted by Certified Caregiving Consultant, Elizabeth Miller, the Happy Healthy Caregiver podcast is where real family caregivers share how to be happy and healthy while caring for others. Elizabeth shares her stories and tips and speaks with current and former family caregivers. A new episode is published bi-weekly on Wednesday mornings.
Day Programs & Professional Help
Memory Cafe Finder
Find a Memory Cafe near you! Memory Cafes are a place where people experiencing cognitive challenges along with caring family members, friends and professional caregivers can find meaningful programming, friendship, and acceptance.
Alzheimer’s Association and AARP Community Resource Finder
Get easy access to resources, community programs and services. Search Adult Day Centers, Home Care, or Housing options.
Additional Resources
US Medicare GUIDE program
The Guiding an Improved Dementia Experience (GUIDE) Model is an eight-year Medicare pilot program (running 2024–2032) designed to improve care for people with dementia while supporting their caregivers. Click here to view beneficiary eligibility requirements. Go here to find a GUIDE program.
Certified Caregiving Consultant
Deb Hallisey: Certified Caregiving Consultant available for advisory services: [email protected].
Government Services Locator
Eldercare Locator is a public service of the Administration for Community Living connecting you to services for older adults and their families. You can also call 1-800-677-1116 for assistance.
Financial and Legal Planning
Alzheimer’s Association Financial and Legal Planning
Putting financial and legal plans in place now allows the person with dementia to express wishes for future care and decisions. It also allows time to work through the complex issues involved in long-term care.
Alzheimer’s Association Legal Documents Overview
Legal documents help ensure that the wishes of the person with dementia are followed as the disease progresses and make it possible for others to make decisions on behalf of the person when he or she no longer can. Please be aware that laws can vary from one state to another.
Find an Elder Law Attorney in Your Area
The National Academy of Elder Law Attorneys (NAELA) is dedicated to improving the quality of legal services provided to older adults and people with disabilities.
Free Legal Help in the United States
LawHelp.org was created to help people without lawyers understand their rights, make informed decisions and connect to help in your local community. LawHelp.org provides referrals to nonprofit legal aid organizations in every state and territory, free legal rights resources, court forms and self-advocacy tools.